A New Treatment Protocol and Some Improvement!

I started a new treatment protocol last Monday for Lyme, Babesia, and Bartonella. I have heard others have gotten much better with this protocol and wanted to see if it would make a difference for me. I am sharing this with you only as my experience, not for medical advice. Please consult your LLMD when considering a new treatment plan.

The treatment plan is six- 4 week cycles. Each week of the 4 weeks is different. Here is the plan:

WEEK 1:

Tigecycline 50mg IV- at Bedtime on Monday, Wednesday, and Friday

Meropenem 1G IV- at Bedtime on Monday, Wednesday, and Friday

Mepron 750mg- in the morning and in the evening Tuesday, Thursday, Saturday, and Sunday

Septra DS- One in the morning Tuesday, Thursday, Saturday, and Sunday

Daraprim 25mn- take 2 in the morning Tuesday, Thursday, Saturday, and Sunday

Lactated Ringers IV- in the morning Tuesday, Thursday, Saturday, and Sunday

Folonic Acid 10mg- in the evening Tuesday, Thursday, Saturday, and Sunday

Lactoferrin 100mg- in the evening Tuesday, Thursday, Saturday, and Sunday

Xylitol 1tsp- in the evening Tuesday, Thursday, Saturday, and Sunday

Tinidazole 500mg- one in the morning and one in the evening Thursday and Friday

WEEK 2:

Meropenem 1G IV- in the morning and at bedtime on Monday, Wednesday, and Friday

Cipro 400mg IV- in the morning on Monday, Wednesday, and Friday

Tigecycline 50mg IV- at bedtime Monday, Wednesday, and Friday

Mepron 750mg- in the morning and in the evening Tuesday, Thursday, Saturday, and Sunday

Lactated Ringers IV- in the morning Tuesday, Thursday, Saturday, and Sunday

Tinidazole 500mg- one in the morning and one in the evening Thursday and Friday

WEEK 3:

Coartem- take 4 in the morning and the evening Monday, Wednesday, and Friday

Lactated Ringers IV- in the morning Tuesday, Thursday, Saturday, and Sunday

WEEK4:

Lactated Ringers IV- in the morning everyday

ALL WEEKS OF THE TREATMENT PLAN:

Nystatin 500,000 units- three in the morning everyday all weeks

Bioenzymes- take 3 on an empty stomach between lunch and dinner all days

Immune Prebiotic Formula- take 4 in the morning everyday all weeks

Complete formula- take 1 in the morning everyday all weeks

Detox formula- take 1 in the evening everyday all weeks

Vitamin D3 5000- take 3 in the morning everyday all weeks

Magnesium- 1 in the morning, 1 at noon, 1 at dinner, 2 at bed, everyday all weeks

Zinc 50mg- take 1 at bed, everyday all weeks

EPA/DHA- take 1 tsp three times a day everyday all weeks

Basic Nutrients IV with Copper and Iron- 3 in the morning, 3 at dinner, everyday all weeks

DHEA 25mg- 1 in the morning every other day all weeks

CoQ10 300mg- 1 in the morning, 1 at lunch, 1 at dinner, everyday all weeks

Niacinamide- 1 in the morning, 1 at lunch, 1 at dinner, everyday all weeks

Naltrexone 0.5 mg- take 3 at bed everyday all weeks

Hydrocortisone 5mg- 1 in the morning, 1 at lunch,  everyday all weeks

Methylcobalamine 25mg- Inject 0.2 ml intramuscularly everyday all weeks

Allithiamine 50mg- 2 in the morning, 2 at dinner, everyday all weeks

Lipoic 300mg- 1 in the morning and one at dinner, everyday all weeks

Acetyl L-Carnitine- 1 in the morning, 1 at lunch, 1 at dinner, everyday all weeks

B2-400 Riboflavin- 1 in the morning, everyday all weeks

D-Ribose- 1 scoop in the morning, 1 scoop at lunch, 1 scoop at dinner, everyday all weeks

Methyfolate- 1 in the morning and 1 in the evening everyday

Lamotrigine 25mg- three in the morning everyday

Armour Thryoid30mg- one in the morning everyday

NEO 40- one first thing in the morning everyday

Pain Medication

I have just finished my first week of this protocol an already see some minor improvements. I feel happier and feel less dead to the world. I also am able to be up and about a little more.

I have been very nauseous and its a constant battle to keep all of this medication in. I use a carbonated mineral water to settle my stomach but sometimes don’t win the battle.

Some of the antibiotics have some potentially serious side effects that I had to consider before I started the protocol but I feel at this point I have to risk it in order to have a chance at feeling better someday. When you are so sick that your entire life has changed you are willing to gamble if there is a chance of improvement! Here are some of the side effects that I am most concerned about:

Tigecycline- It is a rare side effect but an increase in death has been seen in some patients using this medication compared to people using other medications for the same reasons. Permanent vision loss or blindness and hearing changes are also serious potential side effect.

Cipro- Nerve problems or peripheral neuropathy and C-Diff and potential but rare side effects. Also there is an increased risk of tendinitis and tendon rupture. The FDA has told companies that the drugs must now carry “black box” warnings alerting doctors and patients that the drugs can increase risk of tendinitis and tendon rupture in some patients. A “black box” warning is the FDA’s sternest warning.

I fight on against these bacterial and parasitical infections because giving up is mot an option! I am taking all of this one day and a time and celebrating the tiny improvements instead of focusing on the nasty side effects.

I will keep updating on my status and this journey continues.

Be well~

Heather

3 thoughts on “A New Treatment Protocol and Some Improvement!

  1. Slim

    I am on a similar Daraprim protocol for Lyme that went undiagnosed for 22 years. Been treating about a year and this has been the toughest protocol yet. No appetite, nausea, aches, etc. In fact this past week had to take off because it felt like the flu it was so rough. All worth it to get better, just hope it is die off and not side effects from so many meds. Hope it is helping you.

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    Reply
    1. Heatherfightslyme Post author

      Small bits of improvement every now and then are what keeps me pushing forward through the hardest days, which are most days! Keep fighting we can get there. Thanks for reading my blog!!

      Like

      Reply

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