Modified Treatment Protocol

6 Replies

I just had my 6 month appointment with my LLMD and he has modified an antibiotic and changed some supplements. I am feeling like this is such a long hard marathon to get well. Every day is a fight!

Here is my new protocol:

Plaquenil 200mg- Monday, Wednesday, and Friday, 1 in the morning and one in the evening, three weeks on, 1 week off

Zithromax 500mg- Monday, Wednesday, and Friday, 1 in the morning and one in the evening, three weeks on one week off

Minocyclin 100mg- Monday-Friday, 1 in the morning and 1 in the evening, three weeks on one week off

Tinidazole 500mg-Thursday and Friday, 1 in the morning and 1 in the evening, three weeks on one week off

Diflucan 100mg- Monday and Wednesday, 1 in the morning all weeks

Nystatin 500,000 units- three in the morning everyday all weeks

IV Clindamycin 900mg- IV twice a day Monday, Wednesday, and Friday, 3 weeks on, 1 week off

IV Meropenem 1Gm- IV twice a day Monday, Wednesday, and Friday, 3 weeks on, 1 week off

Bioenzymes- take 3 on an empty stomach between lunch and dinner all days

Immune Prebiotic Formula- take 4 in the morning everyday all weeks

Complete formula- take 1 in the morning everyday all weeks

Detox formula- take 1 in the evening everyday all weeks

Vitamin D3 5000- take 3 in the morning everyday all weeks

Magnesium- 1 in the morning, 1 at noon, 1 at dinner, 2 at bed, everyday all weeks

Zinc 50mg- take 1 at bed, everyday all weeks

EPA/DHA- take 1 tsp three times a day everyday all weeks

Basic Nutrients IV with Copper and Iron- 3 in the morning, 3 at dinner, everyday all weeks

DHEA 25mg- 1 in the morning every other day all weeks

CoQ10 300mg- 1 in the morning, 1 at lunch, 1 at dinner, everyday all weeks

Niacinamide- 1 in the morning, 1 at lunch, 1 at dinner, everyday all weeks

Naltrexone 0.5 mg- take 3 at bed everyday all weeks

Hydrocortisone 5mg- 1 in the morning, 1 at lunch,  everyday all weeks

Methylcobalamine 25mg- Inject 0.2 ml intramuscularly everyday all weeks

Allithiamine 50mg- 2 in the morning, 2 at dinner, everyday all weeks

Lipoic 300mg- 1 in the morning and one at dinner, everyday all weeks

Acetyl L-Carnitine- 1 in the morning, 1 at lunch, 1 at dinner, everyday all weeks

B2-400 Riboflavin- 1 in the morning, everyday all weeks

D-Ribose- 1 scoop in the morning, 1scoop at lunch, 1 scoop at dinner, everyday all weeks

Plus I am on a pain medication.

I am only sharing what I am trying but I believe everyone has to try whatever is the best plan for them at the time. I have had several people question my use of antibiotics but I feel this is the best plan for me considering my symptoms. I know there is no miracle cure that fits everyone and that is what is so frustrating about this disease. I personal know several people who have gotten well by using IV antibiotics so this is my chosen course of treatment. I am trying to remain hopeful that this will work for me!

Be well!

Heather

6 thoughts on “Modified Treatment Protocol”

  1. The Person Next to You

    I totally agree – people need to do the protocol that is best for them. I read all the things you are on, and I felt like I was reading the med lists in our house. I recognize many things on your list.

    Are you doing any diet modifications? We have had to do some, and it has helped us, too.

    Liked by 1 person

    Reply ↓
  2. Lemons 'n Lyme

    Unfortunately, treatment is a marathon! But I wish someone had directly said that to me at the beginning because I kept expecting every pill/treatment change to be the magic cure…. much like you, though, it took many tweaks and MANY different pills/IV’s/supplements to start getting better. You are doing great, just keep fighting and know you are not alone. As much as I hated being on abx for so long, I know I needed it to do some serious damage at first so I could move on to more holistic and natural approaches. Here for you ❤

    Like

    Reply ↓

Leave a comment