Scream it, shout it, tell the world about it!

I don’t think we can stay silent and expect anything to change. I think that everyone suffering with Lyme needs to make a promise that when (and I do believe that we all have a when!!!) we get better we will be very vocal about this disease. I think that one of the reason that the disease is so silent is because it knocks us so far down that we struggle most days to eat and shower much less become activists. BUT when we are BETTER we need to scream about Lyme disease from the rooftops!

Nothing will change if we do nothing!

My nurse recently said to me that what needs to happen is someone really famous or a political power needs to come down with Lyme for the disease to get the attention it deserves. This is such a sad reality. Someone needs to get sick before things change?

There are a few celebrities who have come out saying they have Lyme but I wish they would SCREAM about it! I want them to use their platform to repeat over and over how bad this disease is and how political interests have kept the Lyme voice pretty silent.

My plea…

Tell everyone you meet about Lyme disease. Share your stories, get involved when you can and NEVER NEVER EVER be silent!

2 thoughts on “Scream it, shout it, tell the world about it!

  1. Louise

    Hey, Just found your blog! I’ve been sick with Lyme and co for nearly 3 and a half years now. I totally agree and wish that more people would be vocal about it. Judging by the people that I know who have gotten better though, they’re so emotionally, physically, and financially drained by the whole experience that they just want to get as far away from Lyme as possible. They’ve missed family events, their children growing up, their marriage has suffered or collapsed, and they might have to start their career over or at least work extra hard to make up lost time. A lot of them just don’t have the time to give to activism once they’re well because they’re so busy getting their lives back.

    I run a large patient support group in the UK, and I’ve talked at length with the other founder about what we’ll do with it when we’re better and working. We’ve both come to the conclusion that we’re going to have to hand the baton over to someone else – who’s probably sick, because we won’t have the time to give it the time and energy it deserves. We’ll be too busy making up lost time and trying to build a career and a family.

    So yeah, on one hand I agree, people do need to be more vocal, and it would be great if more celebrities were like Yolanda Foster, but I can also see why people aren’t. :/

    Anyway, great blog, I look forward to reading more!

    Louise

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    1. Heatherfightslyme Post author

      Thanks for sharing your thoughts Louise! I hope that all of us can stay connected and somewhat active with Lyme awareness even after we get better. I think we need an army and all of us make a difference in this fight!

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